Today marks 10 years since my first experience of Status Epilepticus. I’ve never gone into a lot of detail about that night, mainly because I can’t remember most of it. However, I think it’s time to finally discuss the events that followed, so buckle up.
VNS Reflections- 2 Years!
Two years ago today I walked through the doors of the National Hospital of Neurology and Neurosurgery feeling scared, frustrated and desperate. I was in a dire situation and was running out of options. That day I had my Vagal Nerve Stimulator (VNS) implant surgery and...
Another post about my mental struggles
Another post about my mental health struggles dealing with epilepsy and its consequences.
60 minutes of sobbing whilst typing
It's 1:35 AM. I'm knackered, have had a busy day and need to go to sleep. But instead, I'm sat here crying. Crying in pain and upset. Right now I hate myself. And I guess the best way to process those sorts of feelings is by writing them out. I know I have a strong...
Another nasty cluster of seizures
This past week has been super difficult. Last Tuesday I had a nasty cluster of seizures and the recovery has been even tougher. I've wanted to write about it all ever since it happened but every time I started composing the piece in my head, it just turned into a...
Ableism in employment for people with epilepsy
This is a report I put together a couple of months ago. Considering that today is International Epilepsy Awareness Day, it seems appropriate to finally share it with all of you. What is Ableism? For those of you who don't know what ableism is, the dictionary defines...
My 2020
At the start of 2020, I made a conscious decision not to make any resolutions. Not to set any goals or aims but rather, for the first time ever, to simply go with the flow. This was a difficult decision for me to make. All my life I've planned everything. But after...
I had another cluster of seizures
I've been writing this blog on and off, in bits for the past week. You see, the end of last week wasn't much of a Fri'yay but more of a Five'day for me. As I had my second cluster of seizures in just two weeks, the fifth and worst of which actually took place whilst I...
Why I Can’t Sleep
This is one of several blogs I've been writing in my head for months now. But I feel it is finally time to fine-tune and post it for all the world to see. As memes and graphic tees have been reminding us for years, there are three things that humans are naturally...