Today marks 10 years since my first experience of Status Epilepticus. I’ve never gone into a lot of detail about that night, mainly because I can’t remember most of it. However, I think it’s time to finally discuss the events that followed, so buckle up.
Remember, remember the fifth of November,Gunpowder, treason and absolute hell for anyone with audio sensitivity. This is version three of this blog. I've been posting slightly edited variants annually for four years now (except 2020). However, I've altered the title...
Two years ago today I walked through the doors of the National Hospital of Neurology and Neurosurgery feeling scared, frustrated and desperate. I was in a dire situation and was running out of options. That day I had my Vagal Nerve Stimulator (VNS) implant surgery and...
Another post about my mental health struggles dealing with epilepsy and its consequences.
It's 1:35 AM. I'm knackered, have had a busy day and need to go to sleep. But instead, I'm sat here crying. Crying in pain and upset. Right now I hate myself. And I guess the best way to process those sorts of feelings is by writing them out. I know I have a strong...
Ever since I built this site I've stayed very on-brand with what I've written. However, when setting up my dad's website a few months back, I was reminded of something. Once upon a time, writing wasn't just about getting important messages out to the world, it was...
One thing I've mentioned recently but not gone into great detail about is my mental health. As I've said before, round about my 25th Birthday something just clicked in my mind. I began hearing and seeing things differently. And for the first time in about 15 years, I...
This past week has been super difficult. Last Tuesday I had a nasty cluster of seizures and the recovery has been even tougher. I've wanted to write about it all ever since it happened but every time I started composing the piece in my head, it just turned into a...
This is a report I put together a couple of months ago. Considering that today is International Epilepsy Awareness Day, it seems appropriate to finally share it with all of you. What is Ableism? For those of you who don't know what ableism is, the dictionary defines...